We are setting up the slip and slide for all three boys to stay cool today.
Making some of these because my zukes are on! http://thepioneerwoman.com/tasty-kitchen-blog/2010/08/great-zukes/
Thankful that after a few discussions with Children's we are all on the same page for a sedated echo on 9/23, Tommy's six month echo appt won't be a wrestling match which I'm so thankful for my tiger to be asleep for. I decided to postpone urology consult until December. Quite frankly, it's just a big conversation about his 'stuff' and I think he just needs a period of time right now to make progress before more medical procedures that could set him back again.
Looking at four different school calendars and gathering them up today. Ideas on organization for that are welcomed. I'm thinking about google calendar because I'm fortunate now to have a smartphone. Perhaps a half day data entry session for everybody's school calendars and then I'll be more able to see at a single glance who is where and when. And of course with my work calendar.
Hannah has fundraisers all weekend for both cheer groups. She is so busy. Last night we watched her cheer at the HS football scrimage game and she looked great. Memorized 100 cheers. And is an athlete with many of the stunts and hurdle type jumps. I've enjoyed leaving her notes here and there to put a smile on her face.
Nate has been an enormous help to me both physically with the ankle biters and emotionally. He is a teenager. Typical. But I'm here to tell you he is the best big brother *ever*. Now that his cast is off and a splint is on, he can play bass guitar again. We've gone on evening walks to see the beaver at the preserve and enjoy the colder evenings.
Liam is full of new ideas lately and initiates 'conversations' with Tommy more often. When I mention preschool again and the names of his classmates he gets very excited.
I'm going to garden today after milking the goat and feeding the turkeys. Colin is fixing the van and truck today, various small projects for him.
Just a simple day. Enjoy!
Grace Unhinged -- A mom's daily ramblings of raising a daughter and three sons. Young adults, twin boys, a farm with goats to chickens, gardening and quilting, work and my sweet husband especially. Taking a day at a time and by the grace of God, we make it thru.
Saturday, August 28
Sunday, August 22
Big Sky Country.... and peaches and our county fair
I think I'm a potential winner for most neglected blog :)
Let's see if I can update everyone on our Montana trip. Hannah couldn't join us this year with all her cheerleading practices and we missed her lots! Nate, Tommy, Liam, Colin and I had fun though. I only felt a couple of moments of "i'm overnumbered by boys"... usually those involved sights of bugs, crawfish, body odor and rock/stick collections. All in all, we had a very relaxing time this year, ten days of camping.
We are blessed to be able to join Colin's family every year and most of his cousins and spend time together. They are all wonderful people who immediately help us feel at home. Sincerely thank you!
We really enjoyed visiting our county fair. For eight years we had participated with Hannah and Nate in 4-H activities and camped at the fairgrounds. This was the first year we went without obligations. And we kinda didn't know exactly what to do.
Let's see if I can update everyone on our Montana trip. Hannah couldn't join us this year with all her cheerleading practices and we missed her lots! Nate, Tommy, Liam, Colin and I had fun though. I only felt a couple of moments of "i'm overnumbered by boys"... usually those involved sights of bugs, crawfish, body odor and rock/stick collections. All in all, we had a very relaxing time this year, ten days of camping.
We are blessed to be able to join Colin's family every year and most of his cousins and spend time together. They are all wonderful people who immediately help us feel at home. Sincerely thank you!
Nate taught the boys which rocks had crawfish under them.
Lots of relaxing moments!
Our trailer is six years old now but still we find it meeting our needs although Nate was way to tall for the bunk beds this time. We pull in next to the cabin because usually it is full with Colin's mom, brothers and our nephews.
Dogs rest in a crate outside the trailer. The trailer gets very small quickly with two boxers and five people.
Young love.
Daddy's arms full.
Nate and his cousin Danny on the intertube.
Liam loved the responsibility of flag boy.
Nate and Danny trying to tell uncle Bruce that he needs to go faster.
Mommy with her arms full.
Nate inside the cabin relaxing.
During the family reunion one of the moms taught us how to make lefse.
Liam REALLY enjoyed his second cousin Kahn.
Nate absolutely would have been on these jet skiis 24 hours aday.
The moon before we enjoyed our bon fire on the last night.
Before you send me an email saying how tired I look, this was ten pm (which I usually hit the hay around 9pm) 9 days into camping, and I had two rugrats on my lap in front of a fire. Yes, I look a bit exhausted.
On the drive from Montana back to Washington, we found peaches! And some nectarines. Which turned into a four step process because I simply love my mom's canned peaches.
Step one. Organize and sort. Ripe ones go first.
Step 2. Water bath.
Step three. Admire some nectarines. And make sure all are sealed (you can hear the seals pop)
Step 4. Wash the jars once cooled to get all the sticky stuff off.
The end result was two dozen quarts. Yum. I always like to think of what the winter days will be like while I'm canning. Will it be a foot of snow? Or will it be just a cold and rainy day? Will there be a northeastern from the Frasier valley in Canada coming down? Whatever the weather, we will have some canned peaches for dessert.
We really enjoyed visiting our county fair. For eight years we had participated with Hannah and Nate in 4-H activities and camped at the fairgrounds. This was the first year we went without obligations. And we kinda didn't know exactly what to do.
Liam found plenty to do. Tommy hated the rides! Hannah and Nate went to the fair on different evenings with their friends and had fun too!
Wednesday, July 28
Do you ever enjoy a picture intensive post?
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| Daddy brought all three boys to the pancake feed which was a testament to patience since I was flipping cakes. |
Tuesday, July 20
I don't have Down syndrome all the time
I saw this on a bulletin board that we belong to "Multiples with Down syndrome (one or more of the twins or triplets have Ds)". I'm not sure how to give proper credit to the author, but to state that this is copied from the post of someone else and the author's name is listed here for his book (this is not my story, copied from someone else because it's wonderful). Need to find the title of the book though, it sounds fantastic:
Dave Hingsburger is an advocate for those with disabilities and gives presentations on this topic fairly often:
We'd just sat down for lunch when we both heard that pronunciation of the word, 'Mother' that communicates so much. 'Muhhhhh-therrrrrr'. I glanced up and saw a frustrated and harried woman, carrying packages from the Bay and her son, a young man with Down Syndrome who was in his pre-teens.
Of course, I listened.
..............
It seems that the mother wanted to go with him to get his food and then have him go with her to get her food, then they would eat together. Son, thought this was silly. Why doesn't she get hers, he get his, then they meet for lunch. She did an admirable job of keeping herself calm. I did an admirable job of just listening, not judging. Who knew what kind of experiences she'd had that led to this arrangement? They had been standing arguing and just before she moved again towards the court he said something that had a profound impact on me as a listener and she as a mother.
'Trouble is you think I have Down Syndrome all the time and I don't,' he said with real frustration.
She stopped again, 'What?'
'I only have Down Syndrome sometimes, when I'm learning something new or if the words are real hard. I don't have Down Syndrome the rest of the time when I'm doing what I know how to do.'
'And you don't have Down Syndrome now?' she asked.
'No, I know how to get my lunch, I buy my lunch at school all the time. I don't have someone with me all the time you know.' he was frustrated, he didn't even realize he'd said something of real importance, to me and to his mother.
'So,' she continued looking at him hard, 'you don't feel like you have Down Syndrome all the time.'
'No, most times I don't even think about it,' he said.
She said, her tiredness seemed to be gone, 'Go ahead, we'll find a table after we've got our food.'
They disappeared from view.
Joe and I looked at each other. I said to him, 'That kid should teach classes to parents of kids with Down Syndrome.'
Dave Hingsburger is an advocate for those with disabilities and gives presentations on this topic fairly often:
We'd just sat down for lunch when we both heard that pronunciation of the word, 'Mother' that communicates so much. 'Muhhhhh-therrrrrr'. I glanced up and saw a frustrated and harried woman, carrying packages from the Bay and her son, a young man with Down Syndrome who was in his pre-teens.
Of course, I listened.
..............
It seems that the mother wanted to go with him to get his food and then have him go with her to get her food, then they would eat together. Son, thought this was silly. Why doesn't she get hers, he get his, then they meet for lunch. She did an admirable job of keeping herself calm. I did an admirable job of just listening, not judging. Who knew what kind of experiences she'd had that led to this arrangement? They had been standing arguing and just before she moved again towards the court he said something that had a profound impact on me as a listener and she as a mother.
'Trouble is you think I have Down Syndrome all the time and I don't,' he said with real frustration.
She stopped again, 'What?'
'I only have Down Syndrome sometimes, when I'm learning something new or if the words are real hard. I don't have Down Syndrome the rest of the time when I'm doing what I know how to do.'
'And you don't have Down Syndrome now?' she asked.
'No, I know how to get my lunch, I buy my lunch at school all the time. I don't have someone with me all the time you know.' he was frustrated, he didn't even realize he'd said something of real importance, to me and to his mother.
'So,' she continued looking at him hard, 'you don't feel like you have Down Syndrome all the time.'
'No, most times I don't even think about it,' he said.
She said, her tiredness seemed to be gone, 'Go ahead, we'll find a table after we've got our food.'
They disappeared from view.
Joe and I looked at each other. I said to him, 'That kid should teach classes to parents of kids with Down Syndrome.'
Thursday, July 15
Never a dull moment
Yesterday afternoon Nate was longboarding from a friend's house in the York neighborhood to meet me at work and get a ride home. My crazy 15 year old son wasn't wearing a helmet and gravity ultimately won during a small downhill battle. He broke his right arm. Both a fracture of the distall radius and a buckle fracture of his ulna. His endurance of pain was amazing. At the ER for four hours he never cried and was really hanging in there (although I would have totally understood crying). So he is splinted and well medicated and resting. Lots of dvds. No swimming. No bicycling. No guitar playing. No longboard (guess that was understood without writing it here).
So, onto today.
Twins to the dentist (appt scheduled six months ago). I cannot adequately describe the sheer decibel level involved with taking twin three year olds to the dentist. Honestly. The scrubbing of the teeth and the fluoride and sealant stuff was applied and then.... the pediatric dentist recommended orthodontics for pulling in Tommy's lower jaw from his 'bulldog' appearance. Hmm. The dentist said that at about six years old would be a good time to do it. If you have older kids with Ds let me know if you have ever corrected this, I can't imagine doing something like that for Tommy. I mentioned to her that I didn't want to do something 'cosmetic' because in my mind he is perfection! But she seemed to think in the long run his jaw would be harmed if left alone.
And then the day got worse.
I called Urology at Children's and explained our pediatrician wants them to look at Tommy's undescended testicles and his very boy part which is still fairly tucked up inside of other skin. Since our pediatrician explained the risk of testicular cancer is higher if left up in that 'warmer' environment, I'm not sure we can decide not to do a surgical procedure where the testicles will be brought down. Hmmm. Help. Anyone out there done this? Sorry for too much information.
I'm going to absolutely relax tonight and give myself some space. Need DULL moments folks. :)
So, onto today.
Twins to the dentist (appt scheduled six months ago). I cannot adequately describe the sheer decibel level involved with taking twin three year olds to the dentist. Honestly. The scrubbing of the teeth and the fluoride and sealant stuff was applied and then.... the pediatric dentist recommended orthodontics for pulling in Tommy's lower jaw from his 'bulldog' appearance. Hmm. The dentist said that at about six years old would be a good time to do it. If you have older kids with Ds let me know if you have ever corrected this, I can't imagine doing something like that for Tommy. I mentioned to her that I didn't want to do something 'cosmetic' because in my mind he is perfection! But she seemed to think in the long run his jaw would be harmed if left alone.
And then the day got worse.
I called Urology at Children's and explained our pediatrician wants them to look at Tommy's undescended testicles and his very boy part which is still fairly tucked up inside of other skin. Since our pediatrician explained the risk of testicular cancer is higher if left up in that 'warmer' environment, I'm not sure we can decide not to do a surgical procedure where the testicles will be brought down. Hmmm. Help. Anyone out there done this? Sorry for too much information.
I'm going to absolutely relax tonight and give myself some space. Need DULL moments folks. :)
Tuesday, July 13
The rose city
We had a great time at the family reunion in Oregon.
We had the opportunity to stay at my aunt's home and spend more time with her and got to see cousins and their families.
Most important to me was a weekend to spend with my mom and my sisters though. We love each other so much and wish we got to spend more time together so it's always a special time when we see each other. Life is just so short there never seems to be enough time to visit with the people you love.
My aunt has a beautiful home and this was the great sandbox that Liam and my niece Madison loved. We all had a blast at the playground next door too.
I love this picture of Tommy asleep after overdosing on cheetos! And my sister Deb taught her daughter Madison how to do the monkey bars. BIG accomplishment Maddie
My mom and my sisters!
My aunt and cousins organized a time and purchased beautiful flowers, so we could go and visit our grandparents and great aunts at the cemetary. It was really special to me to think of how much my grandma would have enjoyed to know that we are all healthy and happy. She had eight granddaughters and we held a sweet place in her heart. Oh Grandma you were probably looking down at us with a big smile.
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