Bathtime

We have lots of fun in our bathtub! I still use a bathring because sometimes I tip over or Liam accidentally knocks me over. But soon, we will be getting a different chair that won't rub up against my gtube.


Mommy will post pictures when it arrives.












Liam loves playing in the bathtub.











Last but not least, after our bath we raided our big sista and brothers room. Shhh, don't tell them!

Outside fun

Chalk art by Liam and Tommy (and lots of help from mom), while we waited for the occupational therapist to visit us at home.








I helped mommy weed in the garden.
And these are the little 'maters that she pulled off the 'mater plant. She enjoyed eating them, I didn't.






Here is Nate practicing with the sweet baby alpaca that he is going to show at the fair. The Weisenhorn family raises beautiful alpacas and are letting Nate 'borrow' this little guy to show.







Last but not least, these are my jump starts peeking out of my shoe. Mommy is going to post more later on my visit to Cascade Dafo. It was wonderful!

Toofer!

Not one, but two teeth popped into my mouth. I don't really like them that much. Nope. Mom sure does though!

They make me want to put my whole hand in my mouth and chew on it. These two toofers are WAY in the back of my mouth up on the top. One is on the left side and one is on the right side. Mommy calls them Mo-lars. But they are my first teeth, so I'll call them Ow-ies.

She puts some pink jelly on them and it makes me wanna smack my lips alot. Mommy says it puts my mouth to sleep so I can't feel the Ow-ies. Since I'm 19 1/2 months old, mommy figures I'm going to pop alot more toofers in soon!

Tommy is feeling better

Thanks to everyone for VERY informative emails and the phone calls. Tommy is definitely on the mend. FULL of energy. Climbing all over the couch and his scooter car.


To bring everyone up to date, Children's Hospital wants Tommy to fully recover from this. Then they will see him for the vessel congestion and shunt vascularity. They (and his Pediatrician) feel it really isn't a pneumonia but rather an inflamation due to a virus or a bacteria in his lungs.


It is treated the same as pneumonia no matter the title of his illness.

Unfortunately it's pneumonia

Tommy has every right to be cranky lately. We took him in to the doctor this afternoon and he feels the chest xray shows mild pneumonia. Heavy sigh. Tommy is sick.


The new gameplan is:

1. Ceftin (antibiotic) 2 times a day. Ceftin is used to treat many kinds of bacterial infections, including severe or life-threatening forms.

2. Nebulizer treatments 4 times daily with albuterol, which is a bronchodilator that relaxes muscles in the airways and increases air flow to the lungs.

3. Pulmicort 2 times a day in his nebulizer. This is an important piece to getting him better. And this is a permanent addition to our daily life. The doctor feels that Tommy's lungs are compromised and need Pulmicort now daily. Pulmicort works by decreasing irritation and swelling in the airways, which helps to control or prevent some of his symptoms.

4. Decadron which is a single dose of a steroid to reduce inflamation.

5. Ibuprofen every 6 hours to control his temp

6. Call Children's Hospital in the morning to ask cardiology if they want to review the chest xray as there may be shunt vascularity and congested vessels. Which may mean that our Oct 7 scheduled echo gets bumped up.

7. Lots of cuddles!

6. Call Children's Hospital first thing in the morning and have them review this chest xray, it might show signs that his blood vessels have congestion and there is shunt vascularity.

Been a little under the weather

I haven't felt well all week. My forehand is really warm, I have a cough and a little clear runny nose. Yuck. And I'm cranky. No, make that REALLY cranky. This picture is from dinner last night at our neighbors home. They are hosting the youth choir from Uganda while they are on break from singing concerts at churches. These kids were so nice to talk to and they even sang for us. Please keep these orphans in your prayers for safe travels, good health and many enjoyable host families. I wasn't happy though..... I moaned the entire dinnertime. Mommy knows I don't feel well, so she cuddled me while we ate and listened to their songs.

Yesterday mom made a mistake with my therapy appointments. She double booked my feeding/speech therapist with my Occupational therapist. Oops. It seemed to work out by the end of the hour, but she was terribly embarassed of her oops. But, let's get on with the good stuff of the visit.... I drank thickened apple juice from a nosey cup! 2 ounces. And we decided to switch to bolus feeds. Partly because I'm already at a rate of 600 per hr, so we all know I can handle a bolus. But HUGELY because mom almost thru my pump out the window on I5 northbound coming from our Portland visit. Our pump has seen better days and just isn't as accurate or effecient as it use to be. Bolus feeds here I come! And many thanks to Shari at Optioncare for talking bolus ideas thru with mommy.

Our occupational therapist watched me climb the staircase and my new bear crawl (but high in the air).

Today we had a speech evaluation from my brother Liam at Connections. Mom and dad both went and we had fun playing with all the toys. I signed itsy bitsy spider song with mommy. I even initiate the song with her, I just hold my hands up in front of me and wiggle my fingers together like a spider. She gets so excited and we sing it together.

Tomorrow it's back to Cascade Dafo for my jump starts! I'll write more tomorrow.

Fun time

Oh yeah! Bounce me again!









I had LOTS of fun at the reunion. Uncle Michael and aunt Elizabeth have a bunny, chickens (with names) and goats (Jelly Bean and George)! Super cool critters.