Daddy and mommy took the boys camping this weekend. We enjoyed visiting with Grandma Sue and Papa Bill as well as old friends Brent and Lisa. Here is a picture of our Halloween outfits. Of course the twins are the cutest chicks and mommy/daddy are chicken farmers!
Grace Unhinged -- A mom's daily ramblings of raising a daughter and three sons. Young adults, twin boys, a farm with goats to chickens, gardening and quilting, work and my sweet husband especially. Taking a day at a time and by the grace of God, we make it thru.
Monday, October 29
What a weekend!
The highlight of the weekend was Tommy's increased oral eating. Here is what mommy tried with Tommy: chicken with ground barley (almost a poppy seed texture, Gerber food), pumpkin pie with whipping cream (okay this one mommy was eating and just decided to use her fingers in Tommy's mouth which is REALLY successful instead of a spoon with new foods and textures), juices thickened in a nosey cup, tapioca pudding, and the BEST was Sunday spaghetti dinner made with ground turkey in the sauce..... yep, he ate it, fork smashed but still the larger spaghetti noodle textures and ground turkey was larger bits for him. He loved it and was reaching for the bowl. I cannot believe how quickly this is increasing for him. We meet with a dietician today and am taking his food journal (very proud of Tommy!). 
Tuesday, October 23
Victory from the NG tube
We saw our favorite pediatrician today to give us the Aokay on using the Gtube. After his approval we celebrated by letting Tommy take his NG tube out for the last time! Daddy was working late so it was just mommy and the kids enjoying a hesitant Tommy removing that nasty nose hose.
Tommy wasn't sure he should pull it with so many people watching. He thought about it for a split second, then quickly started pulling it out....
VICTORY!!!!
Friday, October 19
Catching up
These past two days at home have been SO much easier than other post surgery at "home days". Perhaps it is because the surgery itself was one of the more minor ones, perhaps because Daddy and Mommy are becoming more confident in their parenting of Tommy's special health care needs, perhaps because Tommy is becoming more able to vocalize his needs -- he is amazing.
Here are some pictures to enjoy only because I downloaded my camera from the past week. Whew, that felt great to do. You other moms know exactly how it feels to have those great pictures trapped on your digital camera. Too busy with kiddos to take the time to download but it's always nagging in the back of your head.... wish I could post some pics.


We picked LOTS of apples a few days before Tommy's surgery. Tommy wasn't so sure about putting that apple in his mouth.... Liam showed him how it's done.

The mother of invention --- Grandma Sue! Mommy wanted some leggings made for post Gtube surgery. This would make Tommy's tummy more comfy without a waistband to worry about. Look at these colorful leggins from Grandma's crafty hands.
Here are some pictures to enjoy only because I downloaded my camera from the past week. Whew, that felt great to do. You other moms know exactly how it feels to have those great pictures trapped on your digital camera. Too busy with kiddos to take the time to download but it's always nagging in the back of your head.... wish I could post some pics.
We picked LOTS of apples a few days before Tommy's surgery. Tommy wasn't so sure about putting that apple in his mouth.... Liam showed him how it's done.
The mother of invention --- Grandma Sue! Mommy wanted some leggings made for post Gtube surgery. This would make Tommy's tummy more comfy without a waistband to worry about. Look at these colorful leggins from Grandma's crafty hands.
Wednesday, October 17
Where is Tommy?
He is home!Today we were discharged from Children's Hospital. Tommy is on pain meds but happy to be home. Our shortest hospital stay yet. And Tommy's quickest recovery, so far. Thanks for all of your prayers!
Tuesday, October 16
Surgery success
Tommy is still trying to wake up from the anesthesia, but we can tell you that he has a Gtube, a hyrnia repair (the surgeon brought cartlidge from his ribs together to close the hyrnia), and what seems to be ear tubes (we don't know for sure though as ENT will be talking to us tomorrow).
Tommy has been trying to wake up for over four hours and just can't shake the anesthesia. Mommy plans to stay with Tommy tonight and rock him. Daddy and Liam will be snugglin' at the Ronald McDonald house. Please keep our family in your prayers.
Tommy has been trying to wake up for over four hours and just can't shake the anesthesia. Mommy plans to stay with Tommy tonight and rock him. Daddy and Liam will be snugglin' at the Ronald McDonald house. Please keep our family in your prayers.
Our Little Trooper
Our 9am surgery meant we were in the waiting area at 7:45am and Tommy couldn't be fed past 1am last night. He was hungry! But he patiently waited. And waited. At almost 11am the anesthesiologist finally camed to get our Tommy. He is in surgery now for the next two hours. We will update everyone as we know more.
Huge thanks to Grandma Sue for helping mommy move back into the Ronald McDonald House yesterday. The extra hands were much appreciated while mommy packed the twins around. And thank you Grandma Dorothy for staying with mommy and daddy before surgery as these never get any easier. This is Tommy's fourth stay at Children's and his third surgery, it is no easier than any of the others. We are thankful that he is healthy and didn't catch any colds and the surgery could happen as scheduled.
Please keep Tommy in your prayers today and ask that once again God's wonderful grace will see us through. Please pray for a complete recovery from his incisions.
Huge thanks to Grandma Sue for helping mommy move back into the Ronald McDonald House yesterday. The extra hands were much appreciated while mommy packed the twins around. And thank you Grandma Dorothy for staying with mommy and daddy before surgery as these never get any easier. This is Tommy's fourth stay at Children's and his third surgery, it is no easier than any of the others. We are thankful that he is healthy and didn't catch any colds and the surgery could happen as scheduled.
Please keep Tommy in your prayers today and ask that once again God's wonderful grace will see us through. Please pray for a complete recovery from his incisions.
Sunday, October 14
Wonderful day!
Mommy made it to church today, first time in weeks! Daddy was such a sweetie to stay home with two snoozing babies before he left for the Seahawks game. Mommy heard an inspiring sermon and enjoyed a big mocha as a treat.
This past week has been packed with great activities. Monday was playgroup, Wednesday we had another successful feeding therapy appointment and we finished the week with Nate's football game (they finally won one!). Tommy continues to improve in motor skills (rolling all over and supported sitting). We went to an apple orchard and both boys enjoyed holding what mommy/daddy picked. Aunt Debbie's swimming pool was completed on Saturday so Tommy enjoyed watching everyone splash around (too close to surgery tho for mommy to get in with Tommy).
Tommy's surgery is in two days! Tuesday he will be getting the Gtube, hyrnia repair and placement of ear tubes. Please keep him in your prayers for continued health (no sniffles or coughs) and a complete recovery. We will keep everyone posted thru this website.
Mommy has the van packed with all of Tommy's favorite foods, blankies and toys. This will be a much more comfy hospital stay (if that is possible).
This past week has been packed with great activities. Monday was playgroup, Wednesday we had another successful feeding therapy appointment and we finished the week with Nate's football game (they finally won one!). Tommy continues to improve in motor skills (rolling all over and supported sitting). We went to an apple orchard and both boys enjoyed holding what mommy/daddy picked. Aunt Debbie's swimming pool was completed on Saturday so Tommy enjoyed watching everyone splash around (too close to surgery tho for mommy to get in with Tommy).
Tommy's surgery is in two days! Tuesday he will be getting the Gtube, hyrnia repair and placement of ear tubes. Please keep him in your prayers for continued health (no sniffles or coughs) and a complete recovery. We will keep everyone posted thru this website.
Mommy has the van packed with all of Tommy's favorite foods, blankies and toys. This will be a much more comfy hospital stay (if that is possible).
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