Grace Unhinged: Weekend fun

Sunday, January 24

Weekend fun

Lots of fun this weekend! Hannah and I worked out at the gym which felt wonderful. We went to our friend Alyssa's gymnastic meet. Nate and I ran errands and he spent the night with a friend. Colin and I made homemade laundry soap and I think it turned out well. And the boys and I went to church. Here they are at children's church, Liam had fun drawing on his bible verse...

And Tommy always enjoys the toys...

This week I got the opportunity to take my nephew Owen out for his birthday and we did glo golf! My neice Madison came too. They are just too cute!

Glo golf pictures don't turn out well in the dark, but it was fun.

Last weekend, Colin and I went snowmobiling and I just had to take a picture of our shadow as there aren't too many like it :) We had fun treating ourselves to a weekend away.

Our kids

We hope you find this journal informative and encouraging. Our family includes Hannah (19), Nate (18), Tommy & Liam (7 year old fraternal twins). Hannah is a junior in college, loves soy mochas and spending time with her family and friends. Nate is a freshman at UCSB and is on crew which he loves as well as beachcombing and spending time with his family. Tommy and his twin brother Liam were born on the 12th day of the 12th month of 2006, 12 minutes apart. They are VERY active seven year olds! Liam loves to ride his bike, play basketball and read. Tommy loves to play soccer and anything with Woody or Buzz from Toy Story.

Tommy was born with Down syndrome and Hirschsprung's disease. He had a successful pull-through repair in December 2006, open heart surgery in June 2007 (complete AV canal), surgery in October 2007 to place a G-tube, ear tubes and fix a hernia, and June 2009 to place a second set of ear tubes and clear clogged tear ducts. He was diagnosed with polysaccaride antibody deficiency syndrome (PADS) a moderate immune deficiency. And had moderate-severe sleep apnea and tried to use a cpap while sleeping until he had his tonsils/adenoids removed which now he has no noticable sleep apnea and thank goodness no more cpap machine. In the Spring of 2012 his platlett count continues to decrease so we will be watching that closely but now in 2013 it has stabilized.

"For I know the plans I have for you," declares the Lord. "Plans to prosper you and not to harm you. Plans to give you hope and a future." Jeremiah 29:11

We live each day to it's fullest as tomorrow isn't guaranteed. "Today is the day the Lord has made; let us REJOICE and be glad in it." Psalms 118:24

Grace Unhinged

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Sunday, January 24

Weekend fun

Tommy Adventures

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